Dear Friends and Family,
Emily Rose died this morning at about 4:00 am November 10, 2019. She died of massive organ failure never having regained consciousness after transplant surgery. Peg and I made the decision to discontinue the heroic measures that were keeping her alive. This was as Emily wished. She was without pain or anxiety. She loved this life and fought fiercely but it was time to let go.She was so very weary. She wanted the second transplant it just did not work out. She would want you to remember her today. Maybe some tears but surely some laughter. We will always be surrounded by her awesome spirit but there is a awful hole in our world. It is the most wonderful gift to be her parents and we will forever miss her. It has been the sweetest gift to have shared the wonder of her life.
We love you dearly Emily Rose Monfort
Keith & Peg
Thank you to all for your support.
With you, Keith and Peg. It was our honor to know you, Emily 🌹
ReplyDeleteOur hearts are with you. Emily was such a badass and I love the way she captured life with CF. She had a way of being so honest and hilarious at the same time. Y’all are incredible caregivers and we’ll be thinking of you lots. -Katie Reisinger
ReplyDeleteOur hearts weep with you for her loss. We will miss her amazing spirit and love for life but that will always stay in our hearts. We are here for you Peg and Keith and love you very much. BEth and Kent
ReplyDeleteEmily, you will continue to live on in my heart. I’m grateful for your friendship, you taught me so much. My love goes out to everyone in Emily’s tribe.
ReplyDeleteSending you love. 💕
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ReplyDeleteNo words. Sending love and caring and strength. Emily was a remarkable young woman, a model to us all. A fighter. I have to believe her spirit is now at peace. I hope you are able to tap into that as well. You each gave her more than was humanly possible, pulling energy and compassion from the universe. I know your hearts will always be broken, but have the image of the Japanese art of Kintsugi -- repairing broken pottery with gold. All the wonderful memories and joy that you shared with your little girl will be that gold that holds the pieces together. Emily's courage and strength as she rowed the Colorado, the Rogue. Figure skating. Soccer. Sewing beads on her costume for the Country Fair. Her tenacity and good spirits and frustration and anger and strength of character and will as she dealt with blow after blow that no person should have to face. My heart is with you both. It is with Emily. It is with all the people she pulled into her circle because of who she was. Hold each other, knowing Emily knew in every element of her soul the deep love you felt for her. Love always, Lorinda
ReplyDeleteLorinda your thoughts and sentiments are so beautiful written and echo what is in all our hearts. Love Beth
DeleteBravo, Lorinda. Thanks for saying what most of us are incapable of saying.
DeleteKnowing Emily has been an honor and a gift. My memories of Emily will always be playing tennis in high school. Following her journey over the last decade+ has been heartbreaking and inspiring. Holding your family close to my heart. -Jayme
ReplyDeleteSo incredibly sorry for your loss!
ReplyDeleteKeith and Peg - Our hearts go out to you both. We would like to wrap you with all the love and strength that we can muster. No parents could love a daughter more than you do. No parents could have given more support than you did. She fought the good fight. XOXO deb and jim chapman
ReplyDeleteI was fortunate enough to have meet Emily through FB when I was desperate for knowledge of the life of a CF’er, having been married to a fellow CF’er I craved Emily’s knowledge and zest for life and her amazing wording of living each day to the absolute fullest. I am honored to have known such a beautiful soul. My thoughts and prayers go out to her entire Tribe, who were constantly by her side. It makes me smile a bit on this very sad morning to know she is with Gus now. I’m so very sorry for your loss ❤️
ReplyDeleteEmily, for your friendship and for the light you shined on the world and everyone around you — thank you. I will remember your bright flashing eyes and heartwarming radiant laugh, your daring and your unyielding strength. You taught me bravery and gratitude for the gift of life, but mostly you taught me joy. I love you, Em. Rest peacefully now. Peg and Keith, my deepest sympathies. Candles are lit for Emily and for you. Sending love and light.
ReplyDeleteSo sad. But so blessed we all are, with the love and goodness from Emily and from you all. Our hearts are with you.
ReplyDeleteOur Warrior is at Rest
ReplyDeleteHer valor in this life is matched only by the righteous unwavering support she had from her remarkable parents.
She walks/runs/fights with the glee and power that is her soul and her beloved Gus is by her side.
May her memory be a blessing to us all.
Nancy
Emily: You went out swinging. You lived so courageously. We will forever miss your presence but cannot erase the memories that your life provided all of us. Prayerfully, Keith and Peg can rest assured that you are just behind the door that all of us must pass through. May the healing start now for those that have been left behind, especially Keith and Peg. Mike, Pam, and Amy
ReplyDeletePeg and Keith, we're heartbroken, but between the tears, we're remembering Emily as the beautiful, brilliant, happy, courageous, fearless young woman we watched grow up these past 28 years. Our loving thoughts are with you, and with Emily, wherever she is right now.
ReplyDeleteLove, Nancy & Sandy
Emily - While we hadn’t kept closely in touch over the past decade, you were not only a close friend and confidant from child/teenage hood into our adult years, you were always this incredible inspiration. Not only because you were strong beyond comparison, but because you managed to live life with grace, certainty, and a generosity of spirit that is so rare. I will always picture you laying in the grass, at probably 18 years old, laughing hysterically, and just full of joy. The space you leave in the world can never be filled, but it will always shine. You will forever be missed and loved. Peg and Keith, I’m sending you so much love today and for the journey forward. Wishing you rest, and peace. - Lindzey
ReplyDeleteEmily was an inspiration, simple as that. She was smart and knew what CF meant and she went out and lived life with spirit and enthusiasm despite a relentless disease. She lived life on her terms. There are very few who can claim that. Those of us who had the privilege to know her had a very special honor indeed. She will be remembered in many many hearts forever. God speed Emily.
ReplyDeletePeg and Keith, there are no words to really convey my love and empathy with you right now. Emily brought so much love and courage, such compassion for others, even when she was not feeling well (her many postings on Facebook come to mind) and a fun-loving spirit & creativity that brought life and joy to many. And her boldness in going down the Colorado river not once, but twice!! I warmly remember her ice skating with the miniature nun outfit on as Maria when she was 6 or 7? and her pouring herself into everything she did with so much joy and enthusiasm. There is a big hole in our world down here now that she is physically not here...I am picturing her dancing into heaven, greeted with hugs from Kathy, Patti, our Mom and Dad, and a crowd of others whose lives she has touched in powerful and courageous ways. Peg and Keith, I love you so much, and am here with you for whatever I can do to support you.
ReplyDeleteDearest Peg, dearest Keith,
ReplyDeleteEmily Rose brought so much joy to all who met her. She lit up a room with her sheer presence. Emily was direct, confident young woman with a wonderful dry sense of humor. She fit as much as she could into every day she had with her family and her friends.
We will miss her much. She will always have a big place in our hearts.
Peg and Keith - you have been the best parents and Emily so appreciated you. She considered you her best friends.
With great affection and with deepest sympathies. Love,
Martha and Sergio
Peg and Keith,
ReplyDeleteI am so deeply sorry for your loss.
I went to middle school and high school with Emily, and had been following her journey lately on Instagram, which led me to this blog.
I can’t say I knew Emily well, but from what I saw from her posts over the last few years, I appreciated her outlook and attitude toward life, sense of humor, and openness to share her journey, which is what motivated me to share a message with you here.
I hope somehow knowing the people who were sending positive thoughts and prayers may be meaningful to you.
May you have a safe passage, Emily.
Love and prayers,
Kyle
dear Keith and Peg,
ReplyDeleteI send you both so much love. Emily carried within her the greatest concentration of passion for living of anyone I've ever met. Thank you so much for sharing her with us all- I'm so deeply grateful.
oh em, you've fought so hard for so long. You didn't ask to be a teacher of how to live life vibrantly in the face of adversity, but you've been the best. Your life force is so strong it permeated all whom you met. We are so lucky. Rest easy, dance joyously, be free and full. We will carry you in our hearts.
love here and beyond, darby